For patient communities & health research
A patient community that gathers its members’ experience holds something researchers need and members want protected. The survey is the easy part. The hard part is consent that means something, access that is decided and recorded, and keeping the promise every time the data is used.
Most tools record that someone agreed once. Few can show the exact words they agreed to, or check a later use against what they chose.
A purchase button is not a data access committee. Health data needs an application, a reasoned decision, and a record of every download.
With a rare condition, a table showing three people in one country can point to a family. Totals and datasets have to hide what could single someone out.
Before the first question, each person chooses: this study only, or wider use on their conditions (academic research only, no commercial or pharmaceutical use, no AI training), and whether to hear about matching trials. They can change it later, and every choice is kept with the exact words they read.
A dataset sale or a researcher’s request includes only the people whose terms allow that use. Nothing leaves your team until you switch on sharing for that study.
Applicants give their purpose, institution, ethics approval reference, intended use and how they will protect the data. Your owner or a named committee approves or declines with a reason. Approval opens a download for a limited time, with the licence and agreed terms, and every step is recorded.
No group under 10 people in results or shared links, and cross-tabs hide any cell that could point to someone or be worked out by subtraction. Datasets carry closed answers only, and every mix of age group, gender and country covers at least 10 rows.
Tell the people who asked about matching studies and trials, in the app and on the message channels they chose, in words that say nothing about health. You see counts, never people, and each person decides whether to respond.
Proof of Personhood confirms one real, unique person per account without an ID document. Studies can run on your own web address and brand, with sign-in through your organisation, on plans that include them.
Paste the fingerprint from any Surdatics dataset. You see when it was sealed, how many responses it holds, and whether it has changed since. No account needed.
Check a dataset →Worth being precise about: this is software designed for health studies, not a certification. It holds no health-sector accreditation and makes no study compliant on its own. You still bring your ethics approval, a lawful basis for health data where you work, agreements with the researchers you approve, and a decision about where the data is hosted.
Who you need to hear from, roughly how many responses, and where. You will hear back from someone who can actually answer it.
